Author Archives: jwenzel

9 Years of Clarity: Celebrating the Gift of Sight Alternative Title: Seeing the World Anew: My 9-Year Transplant Anniversary

It is hard to believe that today marks exactly nine years since my life changed forever.

Today, I am celebrating the 9th anniversary of my cornea transplant. As I look around today—taking in the colors, the details, and the faces of the people I love—I am overwhelmed with a sense of stability and profound gratitude.

My transplant is doing great, and my vision is going strong. But reaching this milestone wasn’t a solo journey. It took a team of experts and the ultimate act of generosity from a stranger.

World-Class Care at Home

I have to send a massive thank you to the incredible teams at Mercy Hospital and Wolfe Eye Clinic.

From the initial consultations to the surgery itself and the years of follow-up care, I have felt completely supported. The skill and precision required for this surgery are immense, and I feel so lucky to have had access to such high-quality care.

To the doctors, nurses, and support staff who guided me through the fear and the recovery: thank you for your expertise and your kindness. You helped restore a vital part of my life.

The Gift of Sight

While I am grateful for the technology and the medicine, the true heart of this celebration belongs to someone I will likely never meet.

My transplant was made possible because of an organ donor.

I often think about the donor and their family. I think about the immense strength it must have taken for a grieving family to make a decision in the midst of their worst nightmare. They faced a horrible situation, yet they found the courage to extract a bit of good out of it to help someone else.

Because they said “yes” to donation, I can see.

Their loss became my legacy of sight. There is not a day that goes by that I don’t appreciate the sunset, a book, or a smile, knowing that I am viewing it through a gift they provided.

Looking Forward

Nine years later, my eye is healthy, my vision is clear, and my heart is full.

If you are reading this and haven’t registered to be an organ, eye, and tissue donor yet, please consider it. It is one of the most powerful ways to leave a lasting impact on the world.

Here’s to many more years of clarity!

Eight Years with a Question Mark: My Keratoconus Journey and the Road to Confirmation

Cedar Rapids, IA – Eight years ago today, my world tilted slightly on its axis. I sat in an examination chair at Millers Family Eye Care and heard a term for the first time: Keratoconus. It was a day of answers that led to more questions, the start of a journey with a constant companion I never asked for. Today marks the anniversary of that initial diagnosis, a milestone that is both a reminder of how far I’ve come and a prelude to what lies ahead. In two weeks, I will walk into Wolfe Eye Clinic, hoping to finally have that initial diagnosis confirmed.

For those unfamiliar, Keratoconus is a progressive eye disease where the cornea, the clear, dome-shaped front surface of the eye, thins and gradually bulges outward into a cone shape. This change in the cornea’s shape can lead to distorted vision, increased sensitivity to light, and a frequent need for new eyeglass prescriptions. In more advanced cases, specialized contact lenses or even surgical procedures like corneal cross-linking become necessary to manage the condition and preserve sight.

Living with a potential Keratoconus diagnosis for eight years has been an exercise in adaptation and uncertainty. It’s the subtle ghosting of text on a screen, the halos around streetlights at night, and the constant fear of a world growing blurrier. It’s the cycle of new glasses, the frustration of never feeling like your vision is quite sharp enough, and the underlying anxiety of what the future might hold for my sight.

Anniversaries of diagnoses are strange things. They aren’t celebrated, but they demand to be acknowledged. They are a marker of time, a point on a map that says, “This is where everything changed.” For me, this eighth anniversary is particularly poignant. It represents nearly a decade of living with the idea of Keratoconus, of navigating its suspected effects without a definitive confirmation from a specialist.

The upcoming appointment at Wolfe Eye Clinic feels like a summit after a long and arduous climb. There’s a nervous energy, a mix of hope and apprehension. Hope for clarity, for a concrete plan, and for the validation that what I’ve been experiencing is real. Apprehension for what that confirmation might mean, for the potential treatments and the lifelong management that will follow.

This two-week waiting period is a moment of reflection. It’s a time to look back at the challenges and triumphs of the past eight years and to look forward with a renewed sense of purpose. It’s a reminder that a diagnosis does not define a person, but it does shape their path.

My journey is far from over. In many ways, with this confirmation on the horizon, it feels like it’s just beginning. But today, on this eighth anniversary, I’m choosing to acknowledge the resilience it has taken to get here. And in two weeks, I will walk into that clinic ready for the next chapter, whatever it may hold.

Today marks a milestone

It’s that time again! As of today it has been 8 years since my cornea transplant.

So far I have had four eye surgeries on this eye and the Keratoconus has returned but the corneal cross linking has halted further progression.

Aside from floaters that I rarely see everything is going great.

Today Is A Major Milestone

Today marks my 6 year anniversary of my cornea transplant!.

Sadly not everything is going well as my keratoconus is returning.

Thankfully I caught it rather quickly and recently had CXL done on the effected eye. It’s too soon to tell how effective it will be but hopefully it will extend the life of the cornea graft avoiding another cornea transplant.

While not the best of news it could have been worse. Hopefully things will work out and will be quite some time before i need another transplant.

My First Post Crosslinking Milestone! A Different Milestone Coming Soon!

Today marks the first week since my crosslinking surgery.

It also means that my prednisolone eye drops, and antibiotic eye drops changed from four times a day to three times a day. Though the continuation of the antibiotic drops was only due to healing being slower than anticipated. I expect good news this time around as everything feels like its normal now.

Friday, I have another checkup to see how the healing is going and is also the Six Year Anniversary of my Cornea Transplant surgery!

First Post Crosslinking Checkup Good But Could Have Been Better

Had the checkup appointment to check how I was healing.

While I am mostly healed I still have a small area that hasn’t healed yet. As a result I have to have a second check up in a week and my antibiotic eye drops extended a week.

While the results could have been better it is still progress in the right direction just slower than anticipated. It will be quite some time to judge the results of the crosslinking.

Today Was The Day Of My Corneal Cross Linking Surgery!

Today I had my Cornal Collagen Cross Linking Surgery also known as CXL.

It Went pretty smoothly though my light sensitivity made it extremely difficult to tolerate the light they needed to use to scrap off the uppermost layer of my cornea. This is done so that the drops they use for the crosslinking can penetrate my eye better as without doing it we would have to be doing this for much longer. Plus the US only authorized the Epi off version of this treatment .

Hopefully this will prevent the keratoconus that’s returning on my transplant eye from progressing thus preventing a need of another transplant.

It’s That Time Of The Year Again!

Yes It’s that time of the year again! I have my yearly thank you Christmas Card ready to go for my donor family. Without their generous donation I would be effectively blind in my left eye. It’s thanks to the generosity of grieving family’s with the strength to make some good out of a terrible situation where other people get to have a second chance at life or in my case restore a good level of vision.

And kerataconus is returning with a vengeance

Had my semi annual check up on the state of my eyes.

Unfortunately it was discovered that my left eye my transplant eye is having its kerataconus come back and I will be wanting to get cxl done to preserve what’s left.

Thanks for keeping a close eye on things I was able to get the issue detected before things got out of hand and made another transplant necessary.

The cxl procedure is set for January 10th 2023